This past Wednesday the family, along with John, myself, Ollie, my parents, John's mon and dad and stepmom loaded up and headed to the Children's Hospital in Birmingham for family education. We were introduced to several members of the CF team along with the nurses on the hospital's CF floor. We learned so much about Ollie's disease and what we could expect for the next year as far as doctor's visits and treaments. I feel more secure having met the doctor's and nurses that will be treating her. They are an awesome group of men and women who have dedicated their lives fighting CF and knowing this gives me peace. It looks like several Doctor's visits are in store, we just pray they are all "well" visits.
Right now Ollie is doing great. She now weighs over 8 lbs and is getting bigger everyday. Right now her treatment includes 2 different inhalents (albuterol to open the airways and Tobi to fight the bacteria). She takes these twice daily along with chest PT's in between each one. Chest PT's, or love pats, as we call them, are when we pat Ollie's chest, sides and back to break up any mucus in the airways. Ollie has taken very well to her inhalents and chest PT's and normally will fall asleep during the process.
.JPG)
Other than the adjustment to our new life, everything is still the same. We are all doing great and little O is the cutest, sweetest thing in the world. She is smiling and cooing and thanks to my sister, sticking out her tounge.....all the time!
7 comments:
Glad the trip went so well! She is growing so much and is way too adorable!!!
Glad Miss O is doing so well. That is neat that they invited you all to know what is going on with that sweet baby. We will pray they are all well visits also!
you have such a beautiful little girl.
i'm sure ollie is feeling much better now.
I am so glad to hear Ollie's in good hands at Children's! I want to snatch her up through the screen and give her a big hug and kiss, but since I can't will you do it for me? And tell her she's the sweetest thing I've ever laid eyes on!!
It was so good to see you and Opie-Pie the other day! She is absolutely precious! I miss seeing you all the time! I know you're doing well! We only live about 10 or 12 houses away from each other so we need to see each other more often! Thanks for keeping us updated!
Jeremie
she is absolutely beautiful! Our thoughts and prayers are with you and we hope to get to meet your sweet little girl someday soon!
Post a Comment