Update & Ollie "Fix"

It seems my parents and my sister are having a very hard time being away from Ollie. They have all expressed their desire for an "Ollie Fix". Apparently my mom & dad visit the blog at night to see little O and my sister watches videos on repeat throughout the day. I have been a bit of a slacker on posting but there is not a whole lot to get excited about around here. An update on our current situation is: 1. We will be discharged on Thursday. I don't know what time but I am hoping for the AM. I have been very pleasant and have not complained but come Thursday the staff here on the 5th floor might just get a true "dose" of Lynsey if they don't get us out ASAP. 2. Ollie is still taking antibiotics through an IV. Luckily her picc line has stayed in place and has worked very well for these past 2 weeks. (The tape that holds that line in place better not pull out her hair-if so that true "dose" might come into play!) 3. We will not know if this treatment was successful for at least 2 weeks. Ollie's normal doctor's appointment with her CF doc is a week from Friday (yes, we have to come back that soon). At the appt. they will get a culture and see if the pseudomonas shows up. We should know the results by the following Friday. If the test comes back negative for a stretch of 6 months, the treatment will be considered a success. If it comes back positive within that time, they feel that the bacteria will have colonized and be impossible to kill. All we could do is suppress it with inhaled antibiotics-FOREVER. However, we do what we have to and we will cross that bridge when we get there. (Keep in mind that O is not sick-bacteria, that healthy people cough out, sticks to the lungs of Cfers.) 4. We will be sent home with an arsenal of new drugs. Ollie will be back on inhaled Tobi (she is getting this drug now through IV) twice a day. She will also begin pulmazyme. This helps to break things up in the lungs. If you do the math, O takes 20 pills a day, 4 breathing treatments (2 in the morning and 2 at night) and chest PT's twice daily. Yeah, sorry about your cold. Here is Ollie expressing her aggravation for hospital stays. Mom, Dad & Sammi-ENJOY!